Jessica is a fun-loving friend-to-all person. Beautiful inside and out, and wanting to be there for her friends. She has many friends, which leads to many opportunities for social activities. She doesn't like to stay inside all the time, but that could be partly due to the fact that she had to stay in all the time from January 2008 until the summer of 2009 - because of her illness. But, now that she's feeling better than she was and now that she's 16 and driving... There's the issue of - how do we balance having fun with not doing too much to end up in a crash.
Jessica still has Chronic Fatigue Syndrome (CFS) and still needs to pace her activities, but wants to be a normal teenager. As her mom, I'm feeling like I need to put some limits on the weekend activities. So, therein lies the battle. And it's hard. Very hard. How do you balance being a teenager (or being a mom of a TwCFS) and pacing life because of CFS?
Jessica evidently couldn't go to sleep last night and didn't sleep well. This morning Steve couldn't get her to budge at all. She didn't wake up. And he figured if she hadn't slept, then she probably needed to sleep in, but then there was that thought about the 3 days a semester she doesn't need to miss to be able to skip semester exams, and she's missed one so far. So at almost 7:00a.m. I tried again, and when I got her alert enough, she didn't seem sure that she felt like getting up, but she managed to get up and get there on time. She texted me later and said she felt "so-so." She came home tired still.
We have ice or snow in the forecast tonight. It would be kind of nice if we did have a snow day tomorrow so she can sleep in!
Thursday, January 28, 2010
Posted by Laura (aka Mom) at 1/28/2010 06:04:00 PM