Thursday, January 28, 2010

The Balancing Act

Jessica is a fun-loving friend-to-all person. Beautiful inside and out, and wanting to be there for her friends. She has many friends, which leads to many opportunities for social activities. She doesn't like to stay inside all the time, but that could be partly due to the fact that she had to stay in all the time from January 2008 until the summer of 2009 - because of her illness. But, now that she's feeling better than she was and now that she's 16 and driving... There's the issue of - how do we balance having fun with not doing too much to end up in a crash.

Jessica still has Chronic Fatigue Syndrome (CFS) and still needs to pace her activities, but wants to be a normal teenager. As her mom, I'm feeling like I need to put some limits on the weekend activities. So, therein lies the battle. And it's hard. Very hard. How do you balance being a teenager (or being a mom of a TwCFS) and pacing life because of CFS?

Jessica evidently couldn't go to sleep last night and didn't sleep well. This morning Steve couldn't get her to budge at all. She didn't wake up. And he figured if she hadn't slept, then she probably needed to sleep in, but then there was that thought about the 3 days a semester she doesn't need to miss to be able to skip semester exams, and she's missed one so far. So at almost 7:00a.m. I tried again, and when I got her alert enough, she didn't seem sure that she felt like getting up, but she managed to get up and get there on time. She texted me later and said she felt "so-so." She came home tired still.

We have ice or snow in the forecast tonight. It would be kind of nice if we did have a snow day tomorrow so she can sleep in!

Saturday, January 16, 2010

Results of the Weekend

On my last post, I said I guess we'll find out if the long evening of ice skating was a good decision...

Monday morning of this week, we could not get Jessica out of bed. She didn't budge. Her throat hurt, head hurt, her head was "stuffy," and she was really tired. She stayed in bed almost all day. I took her lunch up to her, and she ate in bed. She finally got up around 3:30; her head had quit hurting, but her throat still hurt and she was still tired. It was definitely a crash. I believe this was due to the fun night of ice skating, but also due in part to some stress Sunday night caused by teenage drama.

Tuesday she still had a sore throat and tired, but was back at school. Wednesday she wasn't too bad, and even made it to dinner with her lifegroup leader and to church that night, after promising me that she would have a calm mostly-at-home weekend the next weekend. The movie Julie & Julia is supposed to be coming in the mail today, so we can have a relaxing movie night tonight!

Saturday, January 9, 2010

Skating Through This

We had a normal Saturday today. We all straightened up the house a little before my parents came over. Jessica stayed home and worked on a school project while Steve and Matthew and I went grocery shopping and to Game Stop (that's why Matthew went along).

Jessica had asked what we were going to do tonight. Lately she hasn't wanted to stay around the house. Maybe it's making up for being around the house so much over the past two years. (Wow - It's been 2 years this past week!) But mostly I think it's being a teenager and being able to drive now. I actually miss time with her, but that's just me getting used to having a 16 year old.

So, tonight on cue, she came down asking if she could get some friends from church together and go to the ice skating rink. They met there at 6:00, and I told her to be home by 9:00. She called at 8:30 saying they were having so much fun (and I could hear in her voice how much fun they really were having) and could she stay for a little long - maybe till 9:00? I love that she has so many friends now, is able to get out and be with friends, and the fact that she was having fun. So, as it turned out she stayed till 9:30. I guess we'll see if that was a good decision in a couple of days.

This skating party got me thinking about Matthew's birthday skating party in July of 2008, 7 months after Jessica got sick. She did put on roller skates that day and I think she went around the rink once, but that was all. She held out for a couple of hours, and then she and I had to leave before he was through having as much fun as he could with his friends.

I am so glad that she is able to do things now, can be more active, have more of a life, and enjoy being with her friends. We've come a long ways since then, and we are thankful!

Wednesday, January 6, 2010

School Started Back

School started back today. Jessica is going to school full time with 3 AP classes. She's taking AP English, AP World History, AP Environmental Science, and Orientation to Teaching. The three AP classes could be hard, as they are supposed to be concurrent credit for college. This semester might need a little more focus. We'll see how it goes.