Today's been a pretty good day. Jessica woke up early (8:00a.m.) because of the thunder. She was tired and laid down to take a nap, but didn't sleep long. We've worked on homework today, and the homebound teacher is here now.
This is our journey with Chronic Fatigue Syndrome (CFS), also known as Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS). Jessica is 17 years old and before January 2008 she was a normal active teenager on the school dance team. In June of that year, she was diagnosed with CFS, after a sudden onset beginning with Epstein Barr Virus mono on January 6, 2008. She is now being treated by a doctor in Dallas. Her primary symptoms include sore throats, headaches, extreme fatigue, lack of focus, and short-term memory difficulties. Her symptoms and the severity of them vary. After missing 45 (partial or whole) days of school in the spring of 2008, she finished out the 9th grade with a homebound teacher. She was completely homebound to start the 10th grade, going 1/2 day the next semester, and then back to full time for the 11th grade. The doctor said it is not cureable, but it is controllable. He did give hope of recovery since she is a child. She has her good days and her bad days - thankfully more good than bad lately. We have had many prayers going up for her!