Friday, June 13, 2008

Friday 6/13/08

Today was a pretty good day. Jessica seemed to do ok. She stayed home and stayed around the house for the most part. Until the evening... It's Steve's birthday, so we went out to dinner with my parents.

We got a call from Dr. A tonight. She had been looking up about the anti-virals, and has decided that she cannot prescribe them. She mentioned doing it for a couple of weeks treatment, but then said the dosage recommended for CFS is longer, and she didn't want to do that. She said she could try to find someone that would. She wants Jessica well too. She also said that the lying/sitting/standing blood pressure test she did wasn't enough for diagnosis of the OI, that it needed to be done on a tilt table and she didn't know who did that. She's going to check the Children's Hospital EBV test results on Monday to see if they tested for the actual virus or only the antibody for it. Then she'll get back with us and see where we go from there.

We're at a loss right now as to what to do...