Friday, June 20, 2008

Friday 6/20/08

We saw Dr. S at the Fibromyalgia & Fatigue Center in Dallas yesterday. This doctor seems to be good and very knowledgeable. They suggest that we bring a tape recorder to the visits as he talks a lot and there is a lot of information. (That also shows us that they're not worried about liability and there's nothing off in left field that they're doing.) I talked to people in the waiting room and got good feedback from these other patients on the clinic and their results.

The doctor spent at least an hour with us. He said Jessica does have Chronic Fatigue Syndrome (CFS) which he says is usually several things going on. The root cause of Jessica's is evidently the Epstein-Barr Virus (EBV) and mono. Our receipt has a diagnosis of CFS, Adrenal Insufficiency, Hypothyroidism, and Viral Infection (EBV). He could tell that she has a thyroid deficiency from her eyebrows, hair loss, hands, feet, and swelling of her tongue. They took 24 viles of blood for testing which should be back in 3 weeks. They do have IV's that they do there to give the patient a boost, but they are optional, and we haven't done that yet. He has prescribed some prescriptions, including an antiviral, along with their vitamin supplements. He said no exercise, and even when she did start feeling better to be careful and pace herself.

We're supposed to go back in a month, and then in another month, and hopefully either telephone appointments or longer between visits after that. There is no cure but it can be controlled. He doesnt know if she will be ok for school by September but hopes so. They usually tell their patients it takes 4 to 8 months.

Finally some answers, and someone that knows... We are excited and hopeful for Jessica's recovery!