We had new neighbors move in 2 doors down a year and a half ago, and, besides the initial welcome, we've hardly seen or talked to them - until today. They were having a garage sale, and I got Steve out of bed at 7:00a.m. to go with me. It was mostly baby stuff, so nothing we needed, but the conversation was. (I don't know that this was just a coincidence meeting today.) They're moving out of state next weekend. We found out that the lady (31 years old) has CFS, which started with mono when she was 16. We talked for an hour. Also, she works from home and gave me some information on that, as that's something that I've considered that I may need to start doing.
Jessica's been tired today, and had a headache for part of the day. She took an hour and a half nap this afternoon. Tonight she's dragging.
Saturday, August 23, 2008
Saturday 8/23/08
Posted by Laura (aka Mom) at 8/23/2008 08:30:00 PM
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2 comments:
Wow! How cool to meet someone right next door who also had CFS. Too bad they're moving. The CDC says there are 4 million American adults with CFS (not counting kids and teens), so there are plenty of us out there. I've noticed, though, that it's hard to find other CFS patients locally, probably because all of us are at home resting a lot of the time and are only out and about when we're doing well (and then no one can tell we're sick). I've recently found a few other people with CFS here in Delaware - through the internet!
Sue
I understand from the school counselor that she's dealt with a couple of current high school students here locally over the past couple of years that also have CFS. I've tried (through the internet) to find local people with CFS, but haven't succeeded. But, you're right, we're indoors a lot of the time (probably the same reason we hadn't really met the neighbor), and when we're out, that means she's doing well and looks well!
Laura
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