Wednesday, December 3, 2008

Wednesday 12/3/08

Jessica woke up at 9:30a.m. still sleepy and with a sore throat. But as the day went on, she did ok.

We had our scheduled telephone appointment with the Dallas CFS doctor. This appointment evidently was just to go over things, check in, review and see how things were progressing. It seems that we're doing all the right things at this point. We just have to keep doing what we're doing "for a while." Dr. S said we did a good thing by removing her tonsils even though there was a setback (because of the anesthesia and surgery). Tonsils are lymph nodes. The Epstein-Barr Virus (EBV) lives in lymph nodes, so the tonsillectomy "lowered her load," by removing a big portion of it and taking them out of her body. Dr. S discussed her thyroid medication. They can tell how the thyroid is doing by vital signs. If the body temperature, pulse and blood pressure are low, that means they may need to bump up the dose. (Jessica's body temperature has been consistently low the last 11 months.) She’s on a low dose of thyroid medication right now, not even up to the therapeutic dose yet, and so he is going to bump it up some. Her energy is not quite where we’d like to see it, and this should help, along with possibly helping with her focus/attention difficulties. He is going to send us a requisition for some lab work to check what was off or low on the lab results that were taken this summer. And our next appointment isn't for another 2 to 3 months. (That's good!)

Maybe her energy isn't quite where we'd like to see it or where it was, but she has been able to do more and we have seen improvement.